My Baby's Back!

We're home!! We arrived home a bit over an hour ago, with a big bag of drugs, a huge box of syringes, and a batch of Infantrini (high calorie top up feed to help build Luke up a bit more).  That, plus the car load of things that a wife and baby need when staying away from home for a couple of weeks.  It is so good to have them back - it already feels like home again (the house really hasn't been a happy place to be while they've been away).

So, here we are for 13 nights before the next planned stay in hospital.  We have lots of things to get used to doing (I say we quite liberally - Letitia has to deal with most of it unfortunately, as I will be out at work, but will obviously do everything I can when I'm home).  There is a relatively complex drug regime of morphine, anti-sickness drugs, antibiotics, the top up feeds, the supplementing of the normal solid food with cream/cheese/butter/anything else which we would all love to eat but cant!), the hoping he doesn't pull his NG tube out (as we will need a trip to the local hospital to get a new one put in) and basically worrying whether he is ok - but he is home again, and that is brilliant.  And really, all of that is no different to being in hospital, it's just that the nurses did most of the drugs and top up feeds, and we didn't have far to travel for a new NG tube.

I mentioned it a couple of days ago, but this place has been somewhat chaotic for the last week or so, as grandparents kicked into action to decorate the room Luke spends most of his time in ready for him coming back.  It's not exactly just involved a lick of paint either, with a new wooden floor, some plastering, new skirting board etc.  It has been relatively straight forward as far as decorating jobs in our house go, but has still taken a monumental effort to do in that time.  We both really appreciate it, and know Luke will love playing in his new room.  Plus, it will be far easier to keep properly clean, so it will be better for when Luke is neutropenic (low white blood cell count, caused by the chemo and leaving Luke susceptible to infection - I think.  It's one of the many things we've been told about and are still getting to grips with).

So, tonight I have a mountain of work to do as I took yesterday off to help get things ready for them coming home, but I work feeling happy, and hoping that the next 13 nights go as slowly as the last fortnight has.